I just realized I needed to update this so here we go:I had emergency surgery this past winter where they removed a blockage the size of a golf ball. Apparently that is what was causing my pain and digestive issues. Why it took so long and so many tests to find I will never know! A golf ball seems pretty effin big to me!!!! Since then I have felt MUCH better. I can eat again and gained back a bunch of weight I had lost. I'm no longer "mostly ill" adn "mostly in bed". I'm actually looking for work and living my life again!!! I don't have health insurance so I haven't been to a doctor in quite a while so I don't know specifically whats going on as far as scleroderma goes- but I don't care cause for the most part I feel better than I have in ages!!!