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(If you know what this is.. Or know someone who does. Please Comment/Add Me So I Have Someone To "Bond" with over these hurdles we both understand) ****Never judge a book by it's cover**** Honestly, you could miss meeting an ahmayzing person. So i'm sure you're all wondering what the hell this is. What the hell it's about. And what the hells been going on with me recently. Since 18months of age. I was diagnosed with NF(Neurofibromatosis)1. There are two type. Type two is far less common, and far more severe. Although they're both severe. I didn't talk in complete sentances till I was about 4 because of this. I started walking at the normal age. I had a speech problem till I was about 16yrs old. And now I speak 1 language other then English (try growing up in a bilingual home with a speech impediment) VERY difficult I then started "ocupational therapy" and it helped. Somewhat I guess you could say. I was fortunate enough not to have to do what some of us had been diagnosed with NF. Have had to deal with. Some have to go through Physical Therapy just to fight for thier chance at what you call a "normal life"I still in a sense if you ever talk to me. See me stumbling through words. I still have a learning disability. I had to fight through my school years JUST to graduate. I'm fighting for my Pre-Med. They at least are making sure i understand 100% Over time, I went through the ups and downs of a normal kid, teenager,young adult, and now.. Having NF, you develop what others call "Birth marks" what we're diagnosed is called "Cafe au-lait" spots. If you had 5 or more at birth and beyond. You went to get checked up on by a specialist. As for the specialist. I went 4 times a year. Pulled out of school on no complete notice. Till about my Sophmore year. And I wasnt seeing a Speech Therapist. And Occupational Therapist. And A Counsler anymore.. (needless to say...12year gap... NOT so good between visits i'll explain later) At these not so lovely 3hr+ visits. They did EVERYTHING you could think up. Yea needless to say Tracing shapes and drawing it 20 times. The alphabet 20 times. Saying the alphabet out loud and colors and shapes. Those weird "what do you see here Ingrid" things (forgot the technical name)Rorshock? Anyways on with the blog At the age of 7 I was diagnosed with Asthma, and as a precaution. I went to get an xray thus leading to one of my 100 MRIs as a kid. They found my first tumor. Ewwww NOT so lucky. When you have NF.. Neuro (meaning the spine brain and nerves) yay for pre med!Your tumors (yes tumorS with an S) can grow where ever in the damn hell they please. If you're one of the "un-lucky" few they grow on your skin. Thus creating skittle size + tumors under your skin (skittles are just a size referance)Of if you're like me.. And your "outside is prettier then your inside" as I say. Your entire body is covered with them. Growin in places like ur lungs your tumors growing tumors. You spine, your ribs ur where ever they feel like it. In my case, all in my pelvis on the nerves to my legs. Which is why I have lower back pain. My neurosurgeon. Dosn't want to take the chance let alone the hours. And slicing me from head to toe. Removing them. With the 50% chance of them growing back. And the 5% (although small)chance of them growing back malignent. So needless to say. If you're female with this its a 50% chance of passing it on to child. Meet a male and he has it 100% chance.. You get this either through your parents. Or in my case genetic mutation. On to my whole out look. I've come to realize that THIS could be what kills me. Avg women live till their 80 (men 60 from what i remember) I'm at the whole point in my life. That I am at decsion. NOT to have children because of this. I can adopt and NOT worry about passing this on to them. Not putting them through what i had to fight for. What my parents had to fight for just so their daughter. Could have a normal life. A "normal" whatever. When the two after her where "perfect dna offsping" Nothing wrong with them. I could lose my vision later in life. I could lose my hearing and go deaf later in life. Because of all the tumors in my hips. I could become paralyzed later in life. Time will tell.. But till then I have to take 1 day at a time. And hope each day everything I wanted it to be. So i've learned up till now. That i'm the one who needs to grab life by the horns. And Live my life to the fullest.

And Her Back

****** If You've Had Back Surgery.. Please Leave Comments!! ******* So if any of you REALLY know me.. You know all about the day after day Chiropractic Appointments, Acupuncture appointments so on and so forth Today My DC (Chiropractor for the non-medically trained ones) is asking for an MRI Which leads me to think Im scared shitless of having back surgery.. I've heard you lose up to 40% or your flexibility Which... as a dancer, and a yoga enthusiast.. I Need my back and every ounce of flexibility I have in me still My back is Incredibly tattooed (obviously) that it's not worth risking my ink. But in order for me to be back to normal. I would have to. Which SUCKS something major for me.. This would push me into thinking... I would qualify for a reduction.. Paid for by the man.But then i lose. Every once of who I am. THIS would be the only option Ughhhhhhhhhhhhh I'm not liking where this is leading!!!!!!!

January 13th

I know.. You're dying for this into my soul.. Probably not.. But lets just pretend.. mmmk? So.. I've come to realize... Is that I'll probably end up being single this entire year again. And i'm willingly being single. Much like last year. Last year was alot of kicking and screaming. I've now decided to Embrace it. With open arms!! I once realized.. When I wasn't looking for a boyfriend.. Had no intrest in one.. That i found the greatest love of my life.. Thus far... And now i'm not interested in it anymore.. Too much of a hassle. Working 80hr work weeks. And as soon as march happens. I'm putting 12Credit hours into full swing. YAY ME! Don't get me wrong I would LOVE to have someone in my life. Maybe I just need to go back to focusing on me. And my Friends/Family who mean the world to me. And would bend over backwards for me. Like I would them *cue sappy music* Man Of My Dreams, I Know you're out there somewhere. Trying to find me. But till I find you. Never give up who you are for ANYONE... ANYWAYS back to reality... On me.. Im happy with who I am. And who i've become since I was 18 an "actual" adult they'd say. I grew up alot since I was 18 been through hell and back... *side note I was in New York when 9-11 happened* amongst other things. Just like everything else. I havent been to Iraq. Although my friends out there *I love you tons come home SAFE to your family/friends* If you want to know what I look for in a man.. I'll make a list...

January 1st

This is an encore. (And me being WAY too open) German tradition! Eat Saur Kraut On the 1st of the year. For Good Luck For The Year YAY! The one tradition I love with everything of me. I'm pure breed german girl. And oh how I love My saur kraut!!! Things That Upset Me: And make me completely understand why. I've been single now. For almost 27months. Yea I know scary thing. Truely it is, for a girl who was so use to being in a relationship. To a girl who is now use to being single. And scared of dare I say "commitment" Example A: (and my only example): Boy likes girl. Girl likes boy. We meet and hang out finally. And there was chemistry to begin with. Because we understood each other. Then the phyical chemistry followed. Boy dosnt want to rush getting into something serious. Because his previous 2of this year. Had failed, and I don't blame him on that. Just how long till something develops though. I'm the girl who likes guys way too easily. And falls for them way too easily. And fast. To where I'm thinking, i'm always the one to screw up. Or so I think. I've become a very open person. To who I am today. I express myself very openly. And probably always will. But when the boy. Makes promises to see you, and then breaks them. I worry that i'm coming on too strong. Or not strong enough. In this case, I think too strong. So here I am confused about what I should do. For now i'm just going to back off. And leave him alone. And give him his space. I'm sure thats what he wants. Since he hasnt text me all day. When I'm use to it being text all day long. I truely hope I'm doing the correct thing. Or maybe he's just being a shallow guy and letting me think I'm too me. Who Knows.Where 'm sure he dosnt want to be. Do note: I understand he's a salesmen. And I understand that hes busy. But even when he was. He would text me and let me know at least. To Him: You know where I live, and where I work. You can figure out the rest xoxo Leave comments, Thoughts, something. Anyways this will hopefully be the ONLY depressing Blog of the year.. xoxoxoxox, Tattooed Angel/Ingrid
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