I'M A DIVORCED WHITE FEMALE, AGE 31. I HAVE 3 CHILDREN. 1 GIRL-(15) AND 2 BOYS.( AGES, 8 AND 9) WE LIVE IN SEMMES,ALABAMA--( MOBILE COUNTY)my 2 boys lives at home with me, my daughter lives with her dad.

I'M CURRENTLY DOING RESEARCH ON GIANT AXONAL NEUROPATHY.

( Giant axonal neuropathy is a rare hereditary motor and sensory neuropathy (HSMN) that severely affects the central nervous system. The first symptoms appear in early childhood. This disorder is characterized by abnormalities in the peripheral and central nervous systems including low muscle tone (hypotonia), muscle weakness, decreased reflexes, impaired muscle coordination (ataxia), seizures and mental retardation. Pale, tightly curled hair is frequently seen in those affected)

Giant axonal neuropathy follows autosomal recessive genetic inheritance.)THERE ARE ONLY 118 CASES OF GAN IN THE WORLD.



Hannah's Hope from Matt Sames on Vimeo.
MY SON IS INCLUDED IN THE 116

IF YOU WOULD LIKE TO KNOW MORE ABOUT THIS ILLNESS, U CAN CHECK OUT MY BLOGS UNDER-( ALAN/ GIANT AXONAL NEUROPATHY)
THIS BLOG INCLUDES WHAT HAS HAPPENED SINCE HIS BIRTH. TEST TAKEN, ETC...





(CURRENTLY HAVING COMPUTER ISSUES, I WILL GET BACK TO EVERYONE WHEN I CAN)

I ENJOY SPENDING TIME WITH FAMILY/FRIENDS, MEETING NEW AND INTERESTING PEOPLE FROM ALL OF THE WORLD.I ALSO ENJOY PLAYING ONLINE GAMES, READING AND COOKING. THE ONLINE GAMES I PLAy ARE ON POGO.COM SCREEN NAME. ( amanda29al )

I DON'T GIVE A FLYING F***, IF U RATE MY PICS, BLOGS, OR WHATEVER ELSE. IF U DO THATS GREAT. BUT I REALLY DON'T CARE ONE WAY OR ANOTHER. ALSO IF I RATE ON PICS,OR BLOGS I DO IT B/C/ I WANT TO, NOT B/C I'M WANTING OR EXPECTING IT BACK.

IF YOU ARE GOING TO TAKE THE TIME AND SEND ME A FRIEND REQUEST OR A SHOUT. PLEASE TAKE THE TIME AND ACTUALLY READ MY PROFILE.




AS FAR AS CONTEST GO. MY COMPUTER IS SUPER SLOW. I WILL HELP OUT WITH ONE OR TWO COMMENTS, BUT I WILL NO LONGER BE COMMENT BOMBING ANYONE.