The following post is posted by my bestest friend about her daughter....Please keep them all in your thoughts and prayers....
I love you San, Jess, Cass, Dave
Ok so Jess finally finished her first 30 days of treatment.This consisted of treatment everyday infused through her PICC line.Once the first 30 days were up they remove the PICC line and she takes he treatment via a pen shot on Mon,Wed,and Fridays.
Soooo,we go in today for the treatment center to teach us about the home injections and to have her PICC line removed and as the IV team is removing it she says "well no wonder that was so easy,it's only a mid-line and not a PICC".I askd her what she meant and she said that a mid-line is not nearly as long as a PICC.When I told her Jess was to have a PICC she seemed concerned and was asking what Jess was having infused.Now I know sometimes I can overreact especially when it comes to my children,but I also know that I saw something by the expression on that womans face.
Then her Dr and the treatment team came in with a cake and a certificate congradulating Jess on her first month being done(which I thought was very sweet).When her dr asked how it felt to have her PICC line out,I said she didn't have a PICC,she had a mid-line.The main nurse that Jess deals with said "yeah so I just heard but we ordered a PICC".
I aslo had questioned the nurses repeatedly through her first month because she wasn't getting ANY of the side effects they were determined she would get.Never did she get a fever or the flu-like symptoms.And when they asked daily about how she wa feeling she told them she was just tired alot.A nurse told me today that Jess is the only patient she has EVER seen that didn't get a fever especially the first night of treatment.
And I also said something to our treatment nurse about the mid-line and she said she was shocked to hear about it.Then she said it's a good thing that she is receiving Interfuron because a different type of drug could have caused serious damage.Well the team that put Jessie's PICC line in a month ago didn't know what she was going to be receiving,only that she would have the PICC line for one month for cancer treatment.Atleast they didn't ask ME what she would be getting.
So now I am wondering if the past month of treatment was for nothing? Maybe this is the reason Jess isn't having any side effects and why her white blood count,red blood count,platelets,along wih everything else is going down instead of up!!And the doctors just look at each other and whisper as they leave the room!
Now Jess of course is telling me not to worry or be mad because because nothing happened.Well there are to many "what-if's" going around and like I tell her,I am entrusting these doctors with her life.
Now I am beyond worried.I have a meeting planned with her doctor this week and I plan on going without her their so they don't try and sugar coat this.I didn't even find out until last week after nearly 5 months of surgeries and treatments that she is stage 3 Melanoma.What else aren't they telling me??
