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    <lastBuildDate>Fri, 27 Oct 2006 15:05:37 -0700</lastBuildDate>     <title>Blue 2day :(</title>
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        <pubDate>Fri, 27 Oct 2006 15:05:37 -0700</pubDate>         <atom:updated>2006-10-27T15:05:37-07:00</atom:updated>         <title>Blue 2day :(</title>
        <description>Well, I went to the orthopaedist today.  Had an xrays done.  They didn't show anything. I will go back to Charlottesville for a MRI on the 8th.  I am very scared of this as I am very claustrophobic.  Plus I will have to take out the remaining body piercings I have. :(  I have no clue how I am going to get my triangle out.  I may have to go to the piercer for that. 

I then go back for the results on the 14th.  I am in so much pain that is making me sick to my stomach at times.  Sometimes I feel as though the doctors think it is all in my head.  But my family can tell you I am in severe pain, as I have a high pain tolerance and they haven't seen me this miserable since I was a child with another mysterious illness that was never diagnosed.  

I have quit my job, because of all of this.  I was the only bread winner in the house as most of you know, because of Billy's illness.  I feel like I am letting my family down at times.  I know that if I don't take care of it now I won't be able to take care of him later down the road.

On top of all of this, the road I am driving with him seems to be going a little faster lately and it is truely scaring me to death.  He is having trouble walking this week.  He has also stop breathing briefly in his sleep several times this week.  His muscle spasms are insane!  He keeps spilling stuff, because of them.  It starting to scare the kids.  Because most of the spasms where at night while he slept but now they are effecting him during the day too.  He has a doctor's appt on the 2nd, I am going to go with him. 

Well, I need to get that off my chest.  Thanks for reading this.

Hugs to all, Kristy

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